Columnist Helen Baldwin endured a devastating loss to SMA, but her experience led to friendships with people fighting ...

Society labels Disabled people as symbols of pity or inspiration. A line in "Superman" resonated with columnist: "I'm human." ...

Ninety percent of parents, expectant parents said they'd want to know early about SMA, and 80% said not screening newborns ...

When SMA symptoms like muscle weakness leave her feeling like a Muppet, columnist Connie Chandler depends on the strength of her community.

Columnist Jasmine Ramos describes how three disability advocates, Brooke Ellison, Judy Heumann, and Christopher Reeve, have ...

Adrian R. Krainer has been awarded the 2025 Heinrich Wieland Prize for his pioneering RNA research that led to the ...

Columnist Ari Anderson's health crisis brought home the importance of communicating to his caregivers when something doesn't ...

Al Freedman, PhD, reflects on end-of-life talks with Michael Morale and the SMA legacy he leaves behind at Cure SMA 2025.

Adrian R. Krainer has been awarded the 2025 Heinrich Wieland Prize for his pioneering RNA research that led to the development of Spinraza.