MacDonald wonders what format a reality TV show might take to best capture the lives of people with hemophilia.
With hemophilia, it's easy to assume that joint pain is caused by bleeding. But that's not always the case, columnist G ...
Hemlibra was found to ease pain and improve quality of life for hemophilia A patients, even those with long-term joint damage ...
Gene therapy using modified blood stem cells helped five adults with severe hemophilia A reach therapeutic levels of clotting ...
For the first time in Denmark, people with hemophilia B have been treated with the gene therapy Hemgenix (etranacogene ...
Commuting in metro areas, whether by public or private transportation, is tricky for people with hemophilia, says columnist.
After having a bad experience getting three vaccines at once, columnist Jennifer Lynne says that next time, she'll space them apart.
As my family started contemplating the people and routines we’ll leave behind in our upcoming job change and move, my thoughts turned to one routine in particular: For over 12 years, I’ve visited my ...
Small vesicles in the saliva of people with severe hemophilia A may explain why these patients rarely have bleeds in their mouth and throat. The vesicles contain a protein complex that’s able to ...
Hummingbirds offer an example to help understand people like Caeleb, who are classified as ambulatory wheelchair users. While these birds soar through the air gracefully and quickly, they must also ...
I hate it when the term “hero” is used to describe me and my daily life with hemophilia. Honestly, I despise it being used to describe anyone living with a rare disease or disability. I think it’s the ...